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EAHAD 2026 Congress Press Release

CongressFebruary 23, 20262KViews0Likes0Comments
Brussels, Belgium, 25 February 2026 - The European Association for Haemophilia and Allied Disorders (EAHAD) is delighted to announce the successful conclusion of its 2026 Congress, which took place in Dublin, Ireland, from 3 to 6 February. Bringing together more than 2,000 delegates from over 77 countries, the Congress served as a vibrant forum for…

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Module 20: Heavy Menstrual Bleeding in Women with VRCFD

E-Learning, EAHAD Academy, WebinarsNovember 24, 20253KViews0Likes0Comments
Explore the E-Learning module on Heavy Menstrual Bleeding in Women with Very Rare Coagulation Factor Deficiencies with Saskia Schols, Christina Burgess, Priyanka Raheja Makhija, Rezan Kadir and Lucia Rugeri. Heavy menstrual bleeding (HMB) can have a profound impact on the quality of life of women and girls with very rare coagulation factor deficiencies (VRCFDs). Understanding…

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Von Willebrand Disease Working Group

October 31, 20253KViews0Likes0Comments
Page (post) title HomePage (post) title Von Willebrand Disease (VWD) is the most common and one of the most complex inherited bleeding disorders. Establishing a dedicated European Working Group will be essential for addressing several critical aspects of this condition. To this end, several well-established and internationally recognized experts from across Europe have been approached, all…

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ERIN Webinar on Bleeding Disorder of Unknown Cause (BDUC)

2025, Events, PartnershipNovember 18, 2025 @ 6:00 pm - 7:00 pm960Views0Likes0Comments
Following our successful 2025 webinars, we invite the bleeding disorders community to join us for the third and final session of the year, dedicated to the important topic of Bleeding Disorder of Unknown Cause (BDUC). People living with BDUC experience symptoms similar to other inherited bleeding disorders, such as excessive bruising, heavy menstrual bleeding, or prolonged…

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Nurses Committee Newsletter – Fall 2025

October 20, 20251KViews0Likes0Comments
Page (post) title HomePage (post) title Nominate a haemophilia nurse for the EAHAD Nurses Committee Award! Let's focus on all the good work that is being done by European haemophilia nurses. Do you have an outstanding colleague making a difference, or perhaps a nursing-led project at your centre deserving recognition? The EAHAD Nurses Committee will choose…

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Nomination Committee

September 29, 20252KViews0Likes0Comments
Page (post) title HomePage (post) title Dr Robert Klamroth Chair Germany Linkedin Twitter Dr Jan Blatny Member Czech Republic Linkedin Twitter Prof. Ana Boban Member Croatia Linkedin Twitter Dr Niamh O'Connell Member Ireland Linkedin Twitter Prof. Wolfgang Miesbach Member Germany Linkedin Twitter Dr Victor Jimenez Juste Member Spain Linkedin Twitter Dr Paul Mclaughlin Member United Kingdom Linkedin Twitter Prof. Flora Peyvandi Member Italy Linkedin Twitter For more information, please consult the Nomination Committee…

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Questionnaire for HCPs regarding Haemophilia Gene Therapy: Knowledge, Information Sources, and Treatment Considerations

Gene TherapyJuly 18, 20251KViews0Likes0Comments
Questionnaire for Health Care Professionals (HCPs) regarding Haemophilia Gene Therapy: Knowledge, Information Sources, and Treatment Considerations TAKE THE SURVEY As innovative gene therapy treatments like Roctavian® (approved in Europe in August 2022 and in the US in June 2023) and HEMGENIX® (approved in the US in November 2022 and in Europe in February 2023) become more…

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Module 17: Inherited Factor VII Deficiency

E-Learning, EAHAD AcademyJune 10, 20252KViews0Likes0Comments
This module offers a comprehensive introduction to Factor VII Deficiency, a rare bleeding disorder with a highly variable clinical presentation. You will explore its definition and prevalence, the circumstances and symptoms under which it typically manifests, and the step-by-step process for biological and molecular diagnosis. The module also provides practical guidance on treatment strategies, including…

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