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Nurses Committee Newsletter – Spring 2025

May 12, 2025562Views0Likes0Comments
Nurses Committee Newsletter Spring 2025 EAHAD 2025 Congress • Nurses Committee Webinar: "How to do a literature search in databases" • Highlights from EAHAD Working Groups • European Principles of Nursing Care for Persons With Inherited Bleeding Disorders • Save the Date EAHAD 2025 Congress Allied Healthcare Professional Day Recap During the Allied Healthcare Professional…

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The Role of Gene Therapy in Haemophilia Care: A Collaborative Effort

Gene TherapyMarch 4, 20253KViews0Likes0Comments
Gene therapy represents one of the most significant advancements in the treatment of bleeding disorders. By offering the potential for durable improvements in clotting factor levels with a single infusion, this innovative approach has opened new possibilities for people living with haemophilia and allied conditions. While gene therapy is still evolving, the progress made to…

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Statement on the ISTH clinical practice guideline for treatment of congenital haemophilia A&B

GenericDecember 10, 20241KViews0Likes0Comments
The European Association for Haemophilia and Allied Disorders (EAHAD) commends the International Society's on Thrombosis and Haemostasis (ISTH) initiative to publish evidence-based guidelines. These guidelines have been subject to considerable discussion, with numerous clinicians and organisations expressing concerns, and we acknowledge the disquiet within the wider community. Nevertheless, it is crucial to remember that guidelines are…

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Joint Health Working Group

November 21, 20242KViews0Likes0Comments
Page (post) title HomePage (post) title Recent advancements in hemophilia treatment have shifted the focus from survival to preventing musculoskeletal complications and improving quality of life. Even minimal joint bleeding can cause damage, but recognizing subclinical bleeding remains a challenge, leading to misdiagnosis and suboptimal care. The purpose of the Joint Health in Inherited Bleeding Disorders…

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EAHAD 2025 Virtual Access Grants – Apply now!

CongressNovember 18, 20241KViews0Likes0Comments
We are very happy to inform you about a great opportunity to help delegates with limited access to funding: The Virtual Access Grants! Physicians and scientists, PhD students, post-doctoral researchers, nurses, physiotherapists, psychosocial professionals and other allied healthcare professionals primarily from low and middle-income countries (LMICs) will get the chance to join EAHAD 2025 online…

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