In the spotlight

Very Rare Coagulation Factor Deficiencies Working Group

Formed in March 2024, the Working Group aims to extend our knowledge of patients with very rare coagulation factor deficiencies with focus on demographics, clinical bleeding phenotype, laboratory phenotype, genotype characterization, treatment strategy and quality of life; to improve health care, concerning diagnosis, genetic counseling and treatment in patients with very rare coagulation factor deficiencies; to define research priorities with the aim to reach all areas in Europe, independent of the socio-economic background; and to facilitate educational sessions for the broad audience of the EAHAD.

Dr Saskia Schols

Chair, Haematologist

The Netherlands

Prof. Johanna Gebhart

Haematologist

Austria

Prof. Gili Kenet

Haematologist

Israel

Prof. Yesim Dargaud

Haematologist

France

Dr Samantha Gouw

Haematologist

The Netherlands

Dr Katharina Holstein

Haematologist

Germany

Dr Samin Mohsenian

Laboratory Scientist

Italy

Dr Maja Sondergaard Knudsen

Patient Representative

Denmark

Prof. Jerzy Windyga

Haematologist

Poland

Dr. Priyanka Raheja

Haematologist

United Kingdom

Dr Maja Sondergaard Knudsen

Patient Representative

Denmark

Prof. Jerzy Windyga

Haematologist

Poland