Discover our latest publications.
2025
- Management of patients with congenital bleeding disorders and cardiac indications for antithrombotic therapy: A clinical consensus statement of the ESC Working Group on Thrombosis, the Association for Acute CardioVascular Care (ACVC), European Association of Percutaneous Cardiovascular Interventions (EAPCI), European Heart Rhythm Association (EHRA) of the ESC, the ESC Working Group on Cardiovascular Pharmacotherapy and the European Association for Haemophilia and Allied Disorders (EAHAD)
- Trends in Treatment of Severe Haemophilia and Impact on Inhibitor Assessment by the EUHASS Registry
- Recommendations for Psychosocial Support during Gene Therapy: Results From an EAHAD Interdisciplinary Roundtable
- Psychosocial Care During Novel Therapies in Haemophilia: A Psychological Framework
2024
- A clinical practice guideline for primary care physiotherapy in patients with haemophilia
- Inhibitor development according to concentrate after 50 exposure days in severe haemophilia: data from the European HAemophilia Safety Surveillance (EUHASS)
- The role of the specialist nurse in comprehensive care for bleeding disorders in Europe: An integrative review
- Inhibitor development according to concentrate in severe hemophilia: reporting on 1392 PUPs from Europe and Canada
- EAHAD haemophilia gene therapy clinical outcome database (EAHAD-GTD)
- Administration of gene therapy for haemophilia – The hub and spoke model and its regional differences and challenges
2022
- Promoting physical activity for people with haemophilia in the age of new treatments
- European principles of care for physiotherapy provision for persons with inherited bleeding disorders: Perspectives of physiotherapists and patients
- Gene therapy of hemophilia: Hub centres should be haemophilia centres: A joint publication of EAHAD and EHC
2021
- Delivery of AAV-based gene therapy through haemophilia centres—A need for re-evaluation of infrastructure and comprehensive care: A Joint publication of EAHAD and EHC
- European principles of care for women and girls with inherited bleeding disorders
- Adoption of emicizumab (Hemlibra®) for hemophilia A in Europe: Data from the 2020 European Association for Haemophilia and Allied Disorders survey
2020
- European Principles of Inhibitor Management in Patients with Haemophilia: Implications of new treatment options
- The EAHAD blood coagulation factor VII variant database
- The European Association for Haemophilia and Allied Disorders (EAHAD) Coagulation Factor Variant Databases: Important resources for haemostasis clinicians and researchers
- Clinical management of woman with bleeding disorders: A survey among European haemophilia treatment centres
- Comprehensive care on paper only? The challenge for physiotherapy provision in day-to-day haemophilia practice