Discover our latest publications.
2024
- The role of the specialist nurse in comprehensive care for bleeding disorders in Europe: An integrative review
- Inhibitor development according to concentrate in severe hemophilia: reporting on 1392 PUPs from Europe and Canada
- EAHAD haemophilia gene therapy clinical outcome database (EAHAD-GTD)
- Administration of gene therapy for haemophilia – The hub and spoke model and its regional differences and challenges
2022
- Promoting physical activity for people with haemophilia in the age of new treatments
- European principles of care for physiotherapy provision for persons with inherited bleeding disorders: Perspectives of physiotherapists and patients
- Gene therapy of hemophilia: Hub centres should be haemophilia centres: A joint publication of EAHAD and EHC
2021
- Delivery of AAV-based gene therapy through haemophilia centres—A need for re-evaluation of infrastructure and comprehensive care: A Joint publication of EAHAD and EHC
- European principles of care for women and girls with inherited bleeding disorders
- Adoption of emicizumab (Hemlibra®) for hemophilia A in Europe: Data from the 2020 European Association for Haemophilia and Allied Disorders survey
2020
- European Principles of Inhibitor Management in Patients with Haemophilia: Implications of new treatment options
- The EAHAD blood coagulation factor VII variant database
- The European Association for Haemophilia and Allied Disorders (EAHAD) Coagulation Factor Variant Databases: Important resources for haemostasis clinicians and researchers
- Clinical management of woman with bleeding disorders: A survey among European haemophilia treatment centres
- Comprehensive care on paper only? The challenge for physiotherapy provision in day-to-day haemophilia practice