EAHAD Latest Projects
EUHASS is a pharmacovigilance program to monitor the safety of treatments for people with inherited bleeding disorders in Europe. Haemophilia treatment centres report adverse events directly to the EUHASS website and regular surveillance reports are produced.
The intention of this project is to gather single gene variant databases involved in clinical bleeding disorders, principally haemophilias A and B and von Willebrand disease, as well as other rarer coagulation factor variants, including Factor VII deficiency.
There are 409 known haemophilia centres in Europe at locations shown on the map. The size and services offered vary enormously with some centres caring for more than 350 persons with severe haemophilia whilst others care for less than five.