EAHAD Projects
EUHASS is a pharmacovigilance program to monitor the safety of treatments for people with inherited bleeding disorders in Europe. Haemophilia treatment centres report adverse events directly to the EUHASS website and regular surveillance reports are produced.
The EAHAD Gene Therapy Clinical Trials Database is user-friendly, publicly accessible database of the latest gene therapy results, with a focus on safety issues. It will be regularly maintained and updated, with the goal to eventually expand beyond haemophilia.
There are 409 known haemophilia centres in Europe at locations shown on the map. The size and services offered vary enormously with some centres caring for more than 350 persons with severe haemophilia whilst others care for less than five.
The intention of this project is to gather single gene variant databases involved in clinical bleeding disorders, principally haemophilias A and B and von Willebrand disease, as well as other rarer coagulation factor variants, including Factor VII deficiency.
Nurses Committee
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