EAHAD Latest Projects
EUHASS is a pharmacovigilance program to monitor the safety of treatments for people with inherited bleeding disorders in Europe. Haemophilia treatment centres report adverse events directly to the EUHASS website and regular surveillance reports are produced.
The intention of this project is to gather single gene variant databases involved in clinical bleeding disorders, principally haemophilias A and B and von Willebrand disease, as well as other rarer coagulation factor variants, including Factor VII deficiency.
There are 409 known haemophilia centres in Europe at locations shown on the map. The size and services offered vary enormously with some centres caring for more than 350 persons with severe haemophilia whilst others care for less than five.
Nurses Committee
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EAHAD Working Groups
EAHAD Networks
EAHAD’s aims are, and have always been, ensuring the provision of high-quality clinical care, educating the medical community and the general public, and promoting scientific research. Our goal is to be a platform where communication, knowledge exchange, and expertise can thrive.
To this end, the EAHAD committees and working groups have established their respective networks. Their purpose is to connect colleagues working in the specialised area of haemophilia and bleeding disorders, build relationships, develop a pool of experts, and raise the level of care for the benefit of all patients across Europe.
Research Grants
The objective of the EAHAD Research Grants is to foster pre-clinical and clinical research collaborations in Europe and to support scientific projects aimed at improving the care of patients with inherited and acquired bleeding disorders.
The grant application cycle runs yearly.
2022
David Stephensen, MD
Kent Haemophilia & Thrombosis Centre, Canterbury
“Identifying Performance-based Outcome measures of Physical function in people with haemophilia (IPOP)”
Lay Summary: The current physical assessment of people with haemophilia focuses on ‘what joints look like’ (joint scores) and includes little information on what activities a person can do and how they might do them. We want to find out what people with haemophilia think about measuring the activities they can do and what the best way of doing this might be. This information could be added to ‘what joint looks like’ when monitoring the physical health of people with haemophilia to give them more information about their condition.
Project duration: September 2022 – September 2023
Grant amount: € 25.000
Anna Wells, PhD
Basingstoke Haemophilia, Haemostasis & Thrombosis Centre
“Exploring Posttraumatic Stress Symptoms and Pain Memories in People with Haemophilia and the influence
on current pain experience”
Lay Summary: We are interested in understanding experiences of previous painful events and exploring how these memories may impact on individuals’ day to day to life. We aim to gain a greater understanding of factors which may influence people’s current pain experience. We hope that what we learn as part of this research can be taken forwards to help develop better pain management within bleeding disorder services.
Project duration: September 2022-September 2023
Grant amount: € 25.000
Heike Hawerkamp, PhD
Trinity Biomedical Sciences Institute, Trinity College Dublin
“Neutrophils wandering in patients with haemophilia (New path)”
Lay summery: This project will investigate the role of neutrophils – a specific type of immune cell – and its secreted
effector molecules in haemophilia. Detailed knowledge about the function of these circulating
immune cells in haemophilia might be highly beneficial in improving patient therapies and healthcare.
Project duration: September 2022 – September 2023
Grant amount: € 25.000