Time to talk: Period
This booklet has been developed by the EAHAD Women and Girls+ with Bleeding Disorders (WG+BD) Working Group as an informational resource for girls who have just started or are about to start their periods. It offers insights that may feel new or familiar, both entirely normal. It also serves as a helpful resource for family members to understand these experiences better. While the booklet primarily addresses women and girls, it is inclusive of all individuals with the ability to menstruate, ensuring they are part of the conversation.
Download the PDF:
European principles of care for women and girls with inherited bleeding disorders
The European Principles of Care for Women and Girls with Bleeding Disorders are now available in five languages: Arabic, German, Italian, Russian and Spanish!
One of the most important goals of our Women and Bleeding Disorders Working Group is to make sure that everyone has access to the knowledge and information shared with our community.
For the full POC publication, please click here.
Useful resources
- Menstrual problems and inherited bleeding disorders featuring Karin Van Galen
- Glanzmann’s Thrombasthenia and pregnancy featuring
- Period Talk Toolkit
- How I manage pregnancy in women with Glanzmann thrombasthenia
- Clinical management of woman with bleeding disorders: A survey among European haemophilia treatment centres
- Managing women‐specific bleeding in inherited bleeding disorders: A multidisciplinary approach
- Short patient video on DDAVP: Developing an educational resource on DDAVP for persons with bleeding disorders
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