In the first edition of the EAHAD Physiotherapists Committee "Meet the Author" interview series, Isolde Kuijlaars speaks about her new original article titled "Evaluating international Haemophilia Joint Health Score (HJHS) results combined with expert opinion: Options for a shorter HJHS".
The EAHAD Nurses Committee have just released their most recent project, the "Adjustable surgery workflow in patients with bleeding disorders". The detailed workflow adresses the different phases, tasks, and responsibilities regarding surgery in patients with a bleeding disorder. By recording what needs to be done by each person at each time, the process becomes clear, controllable, and correctable. The workflow is accompanied by a checklist, which must be adapted based on local circumstances, guidelines and practice.
The 2021 EAHAD Research Grant call for applications is now open. The application cycle runs yearly and the winner will be announced in July 2021.
In October 2020, the EAHAD Physiotherapists Committee published in Haemophilia a letter to the editor titled “Comprehensive care on paper only? The challenge for physiotherapy provision in day to day haemophilia practice”. The Committee called upon funders, medical professionals, centre directors and patient organisations to collaborate in the development and enhanced provision of physiotherapy care.
In October 2020, the EAHAD Physiotherapists Committee published in Haemophilia a letter to the editor titled “Comprehensive care on paper only? The challenge for physiotherapy provision in day to day haemophilia practice”. The Committee called upon funders, medical professionals, centre directors and patient organisations to collaborate in the development and enhanced provision of physiotherapy care.
The International Society on Thrombosis and Haemostasis (ISTH) and the European Association for Haemophilia and Allied Disorders (EAHAD) have announced an educational partnership to collaborate on components of the ISTH Gene Therapy in Hemophilia Education Initiative.
The European Association for Haemophilia and Allied Disorders joined the European Hematology Association and other medical societies and patient advocates across disciplines to call for urgent action to make clinical trials less bureaucratic and more patient-centered, efficient and cheaper.
Throughout the summer, members of our Physiotherapists Committee presented the “Super-Six Challenge for Haemophilia” focusing on the ankle, the knee, and the elbow, as part of the European Haemophilia Consortium's #thisway online campaign.
After careful consideration, the EAHAD 2021 Organising Committee has decided to make the upcoming EAHAD 2021 Congress a fully virtual event, taking place from 3 until 5 February 2021.
Today, 15 July 2020, the European Association for Haemophilia and Allied Disorders together with 69 other thrombosis, haematology and patient safety organisations, published a Consensus Statement on the increased risk of deadly blood clots in Covid-19 patients.
The 2019 EAHAD Annual Report has just been published. In it, readers will find information on all EAHAD-related activities of the past year.