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EAHAD Statement on Upcoming ISTH Guidelines on Haemophilia Treatment

EAHAD Statement on upcoming ISTH Guidelines on Haemophilia Treatment

Brussels, 28 May 2024

The European Association for Haemophilia and Allied Disorders (EAHAD) reiterates its commitment to collaborating with all stakeholders to provide the highest quality care within available resources.

In October 2023, the International Society on Thrombosis and Haemostasis (ISTH) released draft clinical guidelines on haemophilia treatment for stakeholder consultation. EAHAD participated in this consultation and expressed concerns about the potential impact of the recommendations on treatment policies in individual countries.

We understand that significant changes have been made following the feedback. We acknowledge the community’s concerns regarding the potential influence of the ISTH guidelines on national decision-making and treatment choices. It is crucial that guidelines recognize and appropriately value the benefits of new therapies to patients.

EAHAD continues to remain vigilant about issues affecting patient care and outcomes and will provide further comments on the published guidelines as necessary.

You can download the statement (PDF) here.