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Call for Applications: EAHAD Physiotherapists Committee

Physiotherapists, VacanciesDecember 3, 20251KViews0Likes0Comments
EAHAD is inviting haemophilia physiotherapists to apply for up to two (2) vacant posts on its Physiotherapists Committee. The position is for a three-year term that would begin in February 2026. Physiotherapists Committee membership offers an opportunity to contribute to the development and implementation of physiotherapy and inter-professional EAHAD projects and events, including the Allied…

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Module 20: Heavy Menstrual Bleeding in Women with VRCFD

E-Learning, EAHAD Academy, WebinarsNovember 24, 20251KViews0Likes0Comments
Explore the E-Learning module on Heavy Menstrual Bleeding in Women with Very Rare Coagulation Factor Deficiencies with Saskia Schols, Christina Burgess, Priyanka Raheja Makhija, Rezan Kadir and Lucia Rugeri. Heavy menstrual bleeding (HMB) can have a profound impact on the quality of life of women and girls with very rare coagulation factor deficiencies (VRCFDs). Understanding…

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Module 18: Non-surgical management of haemophilic arthropathy

E-Learning, EAHAD AcademySeptember 10, 2025646Views0Likes0Comments
Join us for a dynamic webinar on the non-surgical management of hemophilic arthropathy with Roberta Gualtierotti and Jacopo Acquati Lozej. With a practical, multidisciplinary approach, we will explore strategies to preserve joint health, with a focus on pain management, the importance of tackling synovitis in recurrent joint bleeding, and the prevention and management of osteochondral…

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Questionaire for People with Haemophilia Regarding Haemophilia Gene Therapy: Knowledge, Information Sources, and Treatment Considerations

Gene TherapyAugust 1, 2025660Views0Likes0Comments
Questionaire for People with Haemophilia Regarding Haemophilia Gene Therapy: Knowledge, Information Sources, and Treatment Considerations Questionaire for People with Haemophilia Regarding Haemophilia Gene Therapy: Knowledge, Information Sources, and Treatment Considerations Questionaire for People with Haemophilia Regarding Haemophilia Gene Therapy: Knowledge, Information Sources, and Treatment Considerations Questionaire for People with Haemophilia Regarding Haemophilia Gene Therapy: Knowledge,…

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Questionnaire for HCPs regarding Haemophilia Gene Therapy: Knowledge, Information Sources, and Treatment Considerations

Gene TherapyJuly 18, 2025720Views0Likes0Comments
Questionnaire for Health Care Professionals (HCPs) regarding Haemophilia Gene Therapy: Knowledge, Information Sources, and Treatment Considerations TAKE THE SURVEY As innovative gene therapy treatments like Roctavian® (approved in Europe in August 2022 and in the US in June 2023) and HEMGENIX® (approved in the US in November 2022 and in Europe in February 2023) become more…

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