The European Association for Haemophilia and Allied Disorders (EAHAD) commends the International Society's on Thrombosis and Haemostasis (ISTH) initiative to publish evidence-based guidelines. These guidelines have been subject to considerable discussion, with numerous clinicians and organisations expressing concerns, and we acknowledge the disquiet within the wider community. Nevertheless, it is crucial to remember that guidelines are…

New guidance from the EAHAD, ISTH, EHC, WFH: the management of liver disease in people with congenital bleeding disorders Experts from leading health organizations including the International Society of Thrombosis and Hemostasis (ISTH), The European Association for Haemophilia and Allied Disorders (EAHAD), the European Haemophilia Consortium (EHC), and the World Federation of Hemophilia (WFH)…

Ana Torres Ortuño – In memoriam It is with deep sadness that we were informed of the passing of Dr Ana Torres Ortuño on 16 September 2024. Ana was a cherished member of the EAHAD Psychosocial Professionals Committee. She contributed immensely to the work of our committee since the very beginning. Ana was known for…

Launch of EAHAD Unified Coagulation Factor Variant Databases We are pleased to report that the existing EAHAD individual coagulation factor variant web databases have been brought together into a single unified site at https://dbs.eahad.org. This move harmonizes all existing EAHAD databases and takes advantage of improvements in web hosting and security. The unified site collects…

Call to Action of Concerned Stakeholders on the implementation of the EU HTA and Joint Clinical Assessment for ATMPs Brussels, Belgium - 9 July 2024 The new EU Joint Clinical Assessment (JCA) will become an additional barrier for patient access to transformative advanced therapies if the Health Technology Assessment (HTA) Coordination Group does not modernize…