Skip to content Skip to sidebar Skip to footer
EAHAD
Membership Login
Membership Login
EAHAD
Close

Questionaire for People with Haemophilia Regarding Haemophilia Gene Therapy: Knowledge, Information Sources, and Treatment Considerations

Gene TherapyAugust 1, 20251KViews0Likes0Comments
Questionaire for People with Haemophilia Regarding Haemophilia Gene Therapy: Knowledge, Information Sources, and Treatment Considerations Questionaire for People with Haemophilia Regarding Haemophilia Gene Therapy: Knowledge, Information Sources, and Treatment Considerations Questionaire for People with Haemophilia Regarding Haemophilia Gene Therapy: Knowledge, Information Sources, and Treatment Considerations Questionaire for People with Haemophilia Regarding Haemophilia Gene Therapy: Knowledge,…

Read More

Questionnaire for HCPs regarding Haemophilia Gene Therapy: Knowledge, Information Sources, and Treatment Considerations

Gene TherapyJuly 18, 20251KViews0Likes0Comments
Questionnaire for Health Care Professionals (HCPs) regarding Haemophilia Gene Therapy: Knowledge, Information Sources, and Treatment Considerations TAKE THE SURVEY As innovative gene therapy treatments like Roctavian® (approved in Europe in August 2022 and in the US in June 2023) and HEMGENIX® (approved in the US in November 2022 and in Europe in February 2023) become more…

Read More

Memorandum of Understanding (MoU) with ISTH

GenericJune 22, 20251KViews0Likes0Comments
Memorandum of Understanding (MoU) We are pleased to announce that EAHAD has signed a Memorandum of Understanding (MoU) with the International Society on Thrombosis and Haemostasis (ISTH) reaffirming our commitment to supporting the bleeding disorders community. We are proud to see this collaboration take shape, the result of early efforts and continued dialogue from our…

Read More

Module 17: Inherited Factor VII Deficiency

E-Learning, EAHAD AcademyJune 10, 20251KViews0Likes0Comments
This module offers a comprehensive introduction to Factor VII Deficiency, a rare bleeding disorder with a highly variable clinical presentation. You will explore its definition and prevalence, the circumstances and symptoms under which it typically manifests, and the step-by-step process for biological and molecular diagnosis. The module also provides practical guidance on treatment strategies, including…

Read More

Critical Juncture in Hemophilia Treatment: Global Organizations Issue Urgent Call to Action

GenericMay 10, 20251KViews0Likes0Comments
In light of recent decisions by several pharmaceutical companies to pause, scale back, or discontinue their haemophilia gene therapy programs, the International Society on Thrombosis and Haemostasis (ISTH), the World Federation of Hemophilia (WFH), and the European Association for Haemophilia and Allied Disorders (EAHAD) have issued a formal Call-to-Action. The statement highlights the importance of…

Read More