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Webinar: Clinical Implications of Roctavian’s Market Withdrawal

The recent withdrawal of Roctavian from the market has raised important questions for clinicians, patients, and healthcare systems involved in the management of haemophilia A. As the first approved gene therapy for adults with severe haemophilia A, Roctavian represented a significant milestone in the evolution of treatment options. This webinar will explore the clinical implications…

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Module 20: Heavy Menstrual Bleeding in Women with VRCFD

Explore the E-Learning module on Heavy Menstrual Bleeding in Women with Very Rare Coagulation Factor Deficiencies with Saskia Schols, Christina Burgess, Priyanka Raheja Makhija, Rezan Kadir and Lucia Rugeri. Heavy menstrual bleeding (HMB) can have a profound impact on the quality of life of women and girls with very rare coagulation factor deficiencies (VRCFDs). Understanding…

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Memorandum of Understanding (MoU) with WFH

We are pleased to announce that EAHAD and the World Federation of Hemophilia have signed a Memorandum of Understanding (MoU) in Vienna, reaffirming our commitment to supporting the haemophilia and bleeding disorders community. Together, healthcare professionals and patients can engage in meaningful work that drives progress in care, education, and advocacy. A warm thank you…

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Module 18: Non-surgical management of haemophilic arthropathy

Join us for a dynamic webinar on the non-surgical management of hemophilic arthropathy with Roberta Gualtierotti and Jacopo Acquati Lozej. With a practical, multidisciplinary approach, we will explore strategies to preserve joint health, with a focus on pain management, the importance of tackling synovitis in recurrent joint bleeding, and the prevention and management of osteochondral…

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