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EAHAD 2025 Virtual Access Grants – Apply now!

CongressNovember 18, 2024467Views0Likes0Comments
We are very happy to inform you about a great opportunity to help delegates with limited access to funding: The Virtual Access Grants! Physicians and scientists, PhD students, post-doctoral researchers, nurses, physiotherapists, psychosocial professionals and other allied healthcare professionals primarily from low and middle-income countries (LMICs) will get the chance to join EAHAD 2025 online…

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Pharmacy in preparation for Gene Therapy

Gene Therapy, WebinarsOctober 31, 2024608Views0Likes0Comments
Pharmacy in preparation for Gene Therapy Gene therapy for haemophilia is classified as a genetically modified organism (GMO) product, meaning hospital pharmacies require official authorization to use it. Pharmacies in gene therapy dosing centers must meet specialized technical standards and have pharmacists trained in gene therapy protocols. Join us for our latest Gene Therapy in Hemophilia webinar…

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New guidance on the management of liver disease in people with congenital BD

GenericSeptember 19, 2024392Views0Likes0Comments
New guidance from the EAHAD, ISTH, EHC, WFH: the management of liver disease in people with congenital bleeding disorders Experts from leading health organizations including the International Society of Thrombosis and Hemostasis (ISTH), The European Association for Haemophilia and Allied Disorders (EAHAD), the European Haemophilia Consortium (EHC), and the World Federation of Hemophilia (WFH)…

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Launch of EAHAD Unified Coagulation Factor Variant Databases

GenericAugust 2, 2024788Views0Likes0Comments
Launch of EAHAD Unified Coagulation Factor Variant Databases We are pleased to report that the existing EAHAD individual coagulation factor variant web databases have been brought together into a single unified site at https://dbs.eahad.org. This move harmonizes all existing EAHAD databases and takes advantage of improvements in web hosting and security. The unified site collects…

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Call to Action of Concerned Stakeholders on the implementation of the EU HTA and JCA for ATMPs

GenericJuly 9, 2024527Views0Likes0Comments
Call to Action of Concerned Stakeholders on the implementation of the EU HTA and Joint Clinical Assessment for ATMPs Brussels, Belgium - 9 July 2024 The new EU Joint Clinical Assessment (JCA) will become an additional barrier for patient access to transformative advanced therapies if the Health Technology Assessment (HTA) Coordination Group does not modernize…

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EAHAD Gene Therapy Webinar: Global distribution of gene therapy

EAHAD Academy, Gene Therapy, WebinarsMarch 25, 2024377Views0Likes0Comments
EAHAD Gene Therapy Webinar: Global distribution of gene therapy Join us for an exploration of the global landscape of Gene Therapy with the upcoming webinar "Global Distribution of Gene Therapy" organized by the EAHAD Gene Therapy Working Group. Delve into a comprehensive overview of how various countries manage gene therapy, focusing particularly on Europe and the…

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